Kathleen's father in law who she
fondly calls "the girls Papa" got a nice writeup in
the San Jose Mercury today. She is bummed out for
Papa who recently told her that the team's center is
out with an injury.
Kathleen, though loose most of the day was sleepy
through most of the day and not as alert as the
Kathleen had a good day today. She was awake most of
the day and very loose. Though she did tighten up
initially in the standing frame, she eventually did
very well. (Maybe she enjoyed the especially long
visit [4hrs] by her daughters). Kathleen and Mike's
kids enjoyed the Almaden festivities which included
Halloween Arts and Crafts and then the girls went down
the hall, walked in the resident's rooms and offered
them candy. Almaden has been very good to both
Kathleen and her family and we will miss the people
there when we leave.
Kathleen had some fairly strong tone for periods of
time today but also verbalized often. She was less
sleepy today than the past week. The evening CNA was
convinced that she was trying to mouth words to Samie
on the phone around 8pm. Of course this assessment is
Kathleen was very sleepy and loose during the morning.
She did well on the standing frame too.
Kathleen was very alert in the late evening and seemed
to try and say words upon command. She opened her
mouth and made a variety of noises on the exhale.
ReNeuron, a company the Davey's have been following
just made an announcement.
Kathleen had several bouts today
where her heart rate
shot up to abnormally high levels.
Kathleen will begin a neurogenic diet on Wednesday and
try and cleanse her system of some of the more
powerful medicines in the process. It is crucial that
over the next few weeks those observing her take
diligent notes in the book on her tone and awareness.
Kathleen had a blood test and everything checked out
well. Her white blood cell count is normal, with a
normal differential, making infection much less
As mentioned on 10/17, one of
had her friend and two of her three daughters
murdered. Information about a scholarship that has been
created for the family’s surviving daughter and information
regarding funeral donations can be found here.
Bean seemed very alert today and
enjoyed the visit
from Mike's cousins.
In the late evening Kathleen seemed a bit queasy and
had difficulty with her last meal of the night.
Her hands are more relaxed and much easier to get in
the braces. Visitors seeing Kathleen please note the
schedule on the wall which is being maintained for
braces, feedings, and activities.
Kathleen has been very sleepy in the mornings. The
Davey's are trying to determine whether new medicines
are responsible for the drowsiness.
Samie came to visit her mommy for a couple of hours
and hopped in bed and snuggled with her while they
both watched the video "Bean's Life: Part One". Samie
then got up and recorded in Bean's daily log "My
mother was doing great! I was sleeping in bed with
her." She also drew a picture of Bean in the
wheelchair with a big smile.
More brain repair news.
Kathleen had a good day until the
evening when she
violently bit her lip and held it down. Stressed and
scared she bit harder and tears poured down her
cheeks. She eventually relaxed and released her lip
which though swollen did not break..
Here is a new article on Kathleen and Coach Davey
The last 24 hours have shown a significant improvement
in the tone of Kathleen's fingers and a moderate
improvement in her wrists too. The botox seeming to
have more effect – Bean also seems more relaxed.
Discussion and decisions about casting and bracing options
to maintain and improve her new mobility will be made
Here are some letters to Kathleen from Kathleen’s
From today’s visitors.
There was flooding in Kathleen’s room today. There was
about 4 inches of water in the adjoining courtyard that
leaked into her room .Through the diligence of around
20 staff members, they got things under control as they
mopped, set up a generator to pump water out and
Shop Vac to vacuum water from her room. Physical Therapy
was being applied to Bean (the P.T. who was kind enough to
volunteer her time on several occasions while Bean was at Kaiser
when they wouldn't provide anything) when I left and she was
very pleased with the mobility in Bean's arms. Kathy thought
Bean did well today and thought the fingers of her hands were
much more flexible.
Kathleen got a flu shot which is very important since her
immunity is weakened. She is running a slight fever.
Though Kathleen’s wrists and fingers are slightly
looser, and her tone has been reduced to an extent the
botox, as of yet, has not been as effective as
initially hoped. Full effectiveness is supposed to be
evident in 5-7 days after the shot. The family has to
be diligent in doing range of motion exercises and
putting her wrists in braces.
Kathleen seemed to intently watch a video of Samie as
Kathleen got up in the standing frame with the
assistance of two family members who were trained in
the process for the first time on Sunday. She did
great for 35 minutes.
Please send warm thoughts to the surviving daughter of
a close friend of Kathleen's lead therapist. Her
mother and two sisters were killed by her step father
and she certainly needs prayers and support.
Kathleen again rested more than usual today, but less
Bean moved her head off her pillow up into the air
(against the normal direction of her tone) several
times in the evening and seemed very focused.
One person's take on visiting Bean: It is an oddly
grounding part of my life, spending time with Kathleen
every week, getting to know her and providing
some measure of comfort. Someday, I might even get to
know her well enough to call her Bean. I don't like to
miss my time with her. It is like being a small patch
on a patchwork quilt. Individually, we, the patches
are small, but stitched together provide warmth. A
hole in the quilt, lets in drafts.
Here are some open visitation spots that need to be filled. Thanks!
Kathleen slowly recovered from what seems like was a
traumatic experience (her trip to Kaiser on Thursday).
She slept throughout most of the day. By the end of
the day her eyes, which had appeared sunken, had
returned to their normal beautiful blue.
Kathleen had a duel speech therapy session with
swallowing practice and electrical stimulation (vital
stim.) to help encourage her swallow. Both speech
therapist would like Bean's visitors to give her ice
chips in a very measured way, but not water or food at
Since Kathleen was so diligent about working out, the
Davey's feel obligated to warn other fitness devotees
to get the tests she wasn't encouraged to get by her
physician when Kathleen complained of chest pains.
See this article.
Kathleen went in a cab to Kaiser Santa Clara this
morning for treatment of the tone in her wrist and
fingers. Special thanks to Kathleen's father in law
Dick Davey who stayed with her the entire time and
also Dr. Giap and Dr. Packia Raj who treated gently
throughout. The doctors were very impressed with
Bean's musculature which still remains since her
accident and what a trooper she was throughout the
botox injection treatment.
Kathleen was up for 4 hours in the wheelchair taking
the cab (which was late on the way back) and during
the botox procedure. The last 45 minutes she was very
stressed and she collapsed into a deep sleep when she
got back to bed. During the sleep she seemed very
When she awoke her heart rate skyrocketed into the mid
130s and she was given blood & urine tests and an EKG
to see if there were any problems. Her EKG showed the
same problems that her heart has demonstrated in
previous times of stress, but nothing new. The blood
tests were clean and the urine test was inconclusive.
There was some bacteria in there, but it is likely
colonized and is not causing her to be sick/have
Kathleen stood up for a record 45 minutes on the standing board.
She also held her head up for 18 minutes.
Kathleen received a nice long facial massage by Mike.
Please note: A spot opened for seeing Kathleen this Sat. The Davey
family would be most appreciative if somebody could fill it.
In the course of our research, the Davey
family have discovered that the Stem Cell
research is progressing much faster abroad in
countries like Sweden and the United Kingdom after the
US Stem Cell ban. Now the Bush Administration is
trying to enforce its stance again therapeutic cloning
(which has been approved of in many countries) by
going to the United Nations.
Kathleen did very well on the standing frame today and
was very loose in the morning. Again, however, she
was tight in the evening until she went to sleep
Kathleen bit her lip Monday night and it was swollen
throughout the day Tuesday.
Bean had electrical stimulation on her neck (to
facilitate swallowing) this morning...then slept
through most of the morning except the standing frame.
In the afternoon she vocalized with Elizabeth quite a
bit. Elizabeth noted, "She started with the big yawns
and ho-ho-hums and she was able to do about three
small but very definite swallows of cold water. Then
there was lots of mouth movement - just moving around
her mouth and jaws - I think more than I had ever
seen. I kept talking to her and asking her to talk to
me and she probably made about 15 good tries with the
"Oh" or "Ah" sound on the exhale. I was really
impressed. Then Elina came in suggested that we show
a mirror to her. She zoomed right in, looking at
herself very intently. She was very alert during the
last 45 minutes I was there."
In the evening Bean's hands were very tense with a lot
of tone. She did however seem intent on watching a
video on Samie when she was a newborn.
Kathleen will go to Kaiser Santa Clara on Thursday for
botox treatment. Hopefully she will get a flu shot at
that time also.
Kathleen weighed exactly the same as last week and has
finally seemed to stabilize her weight after losing
considerable muscle early on.
Kathleen enjoyed a beautiful Sunday afternoon and
evening with lots of brief visits from friends.
The Davey family was saddened by the death of
Christopher Reeve. Members of his foundation were
very kind in helping the Davey family get a jump start
on their own research for Kathleen.
Kathleen got up in
her chair twice and had no
problems. Both days were fairly uneventful. She did
however, enjoy time with her daughters, goddaughter,
sisters, and a cousin from back east.
Kathleen has been much more relaxed in the evening
since the change in her diet and the addition of
neurontin. Her late night feeding remains a concern
however as her small stomach seems to have difficulty
handling so much food all at once so late in the
Kathleen got up
twice in the wheelchair today and is
now scheduled to do so daily along with the standing
frame on weekdays.
Kathleen's neurogenic diet was adjusted and she seemed
more comfortable in the evening hours. Kathleen also
started neurontin in the evening.
Kathleen is scheduled to get botox injections to help
her spasticity in her wrists and fingers next Thursday
at Kaiser Santa Clara. Kathleen will get there by a
wheelchair taxi service.
Rachie (5) who has done more than her fair share of
crying as of late, excitedly drew this picture for
her mommy and proudly delivered it to her today to put
on her wall. She also enjoyed telling her mommy
about her Irish dancing class before trying to con
some snacks out of another of Kathleen's guests, Rusty.
Kathleen was again very loose all day long until the
evening hours until her heart rate raced up, she
stiffened up considerably and her tone set in.
Kathleen's neurogenic diet is going to be altered
slightly to try and relax her more in the evening
Ground broke on Kathleen's new room at the Davey
house. The family is gutting a bathroom to make a
shower wheelchair friendly and adding a new room for
her downstairs since she won’t be able to make it
upstairs to the master suite. Rachie and Samie were
thrilled with the work and want to "watch TV with
Mommy when she comes home"
Kathleen was again
very sleepy today though less so
than yesterday. Kathleen received a massage, stood in
the standing frame
and otherwise had a non-eventful
Kathleen's status as "minimally
conscious" is finally
getting some study by scientist. See this very interesting
Kathleen had a shower this morning. After briefly
throwing up her medicine which she had just taken, she
seemed to relax. For
the first time, she closed her
eyes as the water approached at the appropriate time
and kept them closed.
Kathleen was very sleepy throughout the day and into
the early evening.
She even slept in the standing
frame and the wheelchair.
Kathleen increased the dosage of her neurogenic
Mike had a good meeting with Dr. Giap and Dr.
Packia-Raj regarding Kathleen's long term therapy and
All agreed that though the
worst of Kathleen's tone was in her wrist and fingers
and that botox would likely be helpful. Yet, Bean's
tone was also global and that it would need to be
managed by many means including medicine, physical
therapy, and splinting and casting. Dr. Giap
suggested Neurontin. (Here is an article on Nerontin
or Gabapentin). Though
hesitant due to its
potentially sedating effects, the Davey's agreed to a
small dose at night only for a trial period. The
meeting as a whole, however, was positive and the tone
brought to the table about treatment rather than
maitenance of care was a refreshing change.
Mike has never instructed a student on how to vote or
told them how he has voted.
Yet in this case he has
asked all visitors of this page to please vote yes on
Prop 71 and support government funding for both
embryonic and adult stem cell. Though stem cells to
regrow brain cells is
still in its infancy, research
that the family has done suggests that it is showing
great promise in rats and some higher animals, and
support for the research can potentially aid Bean and
many others in the future.
Today was mostly a quiet day for
Here is an article
on a potential stem cell source.
Here is the Oct. 4-10 Schedule. The holes in the s
chedule still need to be filled.
Kathleen had an excellent morning
in which she
vocalized often saying the "La" sound in particular.
Kathleen seemed uncomfortable throughout the afternoon
after she came out of the wheelchair. She made her
"snoring sound" which suggests she is unhappy about
Kathleen stopped snoring when she got back into the
wheelchair in the evening for a BBQ outside on the
patio with her family and friends. She had carrot
juice while her family had carrots and sausage.
Kathleen resumed her snoring in the evening when she
returned to bed.