The Davey family has been informed
that today is the
final day Kathleen's care is covered by Kaiser.
Starting tomorrow the family will pay the daily
charges. The phone message reporting this fact noted that "Her
benefits have exhausted."
Kathleen had an X-ray on her
swollen back (which looked
much better today). The tests were negative for bone
damage or new growth.
Kathleen was again very tight in the evening. This
phenomena seems to be becoming a pattern.
Bean had a good session of speech
therapy on Tuesday.
She used her tongue and tried very hard to imitate
PLEASE NOTE: This updates page will be moving to a
new server. The new address is http://www.getwellkathleen.us/
Please change your links address accordingly.
Kathleen got a new light blue (her favorite color) wheelchair today.
loves her new chair. She immediately
fell asleep in the chair and already seems to have
longer tolerance for sitting in the new chair.
Kathleen had another small incident with vomiting
after being changed shortly following a meal. When
the family got her up in the standing frame, however,
they were even more concerned by a large 4 inch area
on her back which seemed like a hard bump. No news
yet on what it might be. The family is concerned that
it might be a potential first sign of Heterotrophic
Ossification, however, the spot of the injury is not a
place prominent for that ailment.
Kathleen looked beautiful today. She had her hair
fixed by one of the help staff who added hair
extenders and makeup. Therapist and CNAs alike
continue to comment on her lack of bed sores, and
unbelievable muscle strength after 10 months in the
Kathleen appeared exhausted from her trip home for
much of the day until the evening when she was very
alert and appeared to be visibly concentrating on both
her daughters voices on the phone and not throwing up
(which she managed to avoid).
Kathleen slept all morning and then remained alert and
active for six hours while home for Thanksgiving. She
seemed to be examining her new
hopefully liked it). She was told that her sister in
law Kim (Tutu) was cooking Kathleen's famous
"southwest turkey" which had rave reviews.
In the evening Kathleen seemed to have trouble winding
down from the day's events and threw up a little of
her "late evening snack."
Promising cord blood news in a human clinical test:
Kathleen had a very good morning. In an extended
physical therapy range of motion session with a
volunteer she improved greatly on her range then
did wonderfully in the standing frame. Kathleen also
weathered the storm of a temper tantrum by one of
her daughters (which humored the hospital), yet visibly
Mike's cousin, who often has dreams which foretell
something saw Kathleen sitting up and speaking
haltingly in her dreams last night. That image is
one which the entire family would like to become
"Kathleen's nurse" was involved in an auto accident
but first reports are that she is okay though at emergency.
Since this incident so many nurses
been kind and caring to Kathleen and the family.
Please hold Cece in your thoughts today. She
stands out among the best of so many excellent
Kathleen again seemed to be recovering from her
bout with an illness and slept for much of the day.
Another story about our wonderful community:
Three boys, 13, 9 and 5, came to the Mercury today
after rolling all the coins they had collectively saved
or had around. In a heavy, heavy shoebox, they had
$126 they gave us for the Davey wish.
Kathleen slept for much of the day and seemed to feel
better. Her fever broke and she was loose until the
late evening hours.
Any volunteers who have some time to spend with
Kathleen during this hectic Thanksgiving week would be
appreciated. Many of Kathleen's usual visitors are
out of town this week putting an extra burden on the
family to change their schedules to insure Kathleen's
Kathleen had a wonderful morning. Several times she
again raised her left arm and fingers upon command
from her sister Sheila. In the early afternoon,
Kathleen's set backs with her food continued as she
again vomited. In the late afternoon Kathleen
verbalized many long, loud noises of either discomfort
or sadness (the family has been reporting a look of
sadness on her face the past few days) followed by a
series of coos. Later, with Tom and Allison, she
moved her head back and forth following them.
Kathleen registered her first fever in quite some time
99.9 but seemed to feel better as the evening progressed
Kathleen story was featured in an article on the
front page of the Mercury News today in a compassionate
feature written by Mike Antonucci.
Kathleen continues to struggle with her stomach. For
much of the morning she appeared to be gagging ready
to throw up, but held it in.
Kathleen was fairly sleepy today, but for alternating
periods very alert. In the late evening Kathleen
raised her arm several times and moved her fingers.
The actions were not related to some clonus jerks that
she has been having since she reduced her Keppra
Kathleen had, for the most part, a good day Friday.
She seemed alert throughout the day (although she did
have some tremors), but did throw up in the morning
Bean had a quite morning and was very sleepy. She had a tough early
afternoon. She had a short time in the standing frame and vomited in the
afternoon. The rest of the day, she seemed to visibly be trying to avoid
throwing up again.
Kathleen did seem to respond to music during the day. (At times snoring
with the beat.) Her heart rate also respond to the music. As a whole
during the day, her heart rate was very high and she seemed uncomfortable.
Kathleen may have caught a cold which the family is also fighting.
George Bush continues is continuing his assault on
stem cell research at the United Nations by seeking a
worldwide ban which is unfortunately drawing
significant support. Here is the story.
We encourage you to write your congressman and
support both more grants for regenerative medicine and
stem cell research and an end to the Bush campaign in
the UN against stem cells.
There is also promising research being done at Stanford on
stroke patients. As it progresses from rats to
clinical studies on humans, the Davey's would
appreciate people with contacts there to help Kathleen
get "in the door."
Kathleen seemed rested and relaxed today and was
remarkably loose. She seemed more alert as the
morning went on. Her swallowing has improved and
visitors who know work with her regularly are
encouraged to work with her on eating ice chips
(remember to put her head forward and sit her up in
The Davey family would like to again thank everyone
who has been so instrumental in maintaining the health
and well being of Kathleen. Her daughters have spoken
frequently about how they feel the love of so many in
the community and always want to know "who is helping
mommy." The financial and time contribution of so
many organizations and individuals who seek nothing in
return certainly portrays a different story than is
seen on the nightly news. People like Keith Howe who
volunteers regularly to give Kathleen chiropractor
care and others who do innumerable tasks at the drop
of a hat like Jan Birenbaum, Cece Arnold, Risa
Schwartz and Elizabeth Meyer (to name just a few among
so many amazing people) have given more than they can
imagine. I would also like to thank the author of
this web site (Kirk Abe) for his personal friendship
and tireless efforts on Kathleen's behalf (but also
one who will likely erase this line unless he just
copies and pastes.) :)
- Mike Davey
Kathleen was very tight today and seemed
uncomfortable. In the evening, a Reiki session by
Joan appeared to relax her greatly.
Recently, Kathleen seems very sensitive to touch.
On a sad note, Kathleen’s Great Aunt Ruth passed
away. She held Kathleen close to her heart. One of her
last words was “Bean”.
Kathleen had a terrific day. She was able to go home
in the new family van and visit the house for dinner
and bedtime prayers. The girls excitedly took her
around the house and showed her their drawings, the
ongoing addition etc. Kathleen appeared relaxed and
alert and responded to the girls requests to open her
mouth several times.
Kathleen was very active today. After a sleepy
morning, her eyes were moving rapidly throughout the
day and she was awake till late in the evening
The family plans to bring Kathleen home tomorrow for
The family intends to bring Kathleen home. However,
apparently MediCal will pay for most of her expenses
ONLY if she is in a nursing home. Thus the clearly
flawed California law encourages care providers to
send their loved ones away to languish in a skilled
nursing facility for the rest of their lives even if
the family desires to bring them home. Feel free to
write your assemblyman/woman regarding this issue.
Kathleen's representative is:
District 24 Rebecca Cohn:
Assemblymember.Cohn@assembly.ca.gov District Office
901 Campisi Way, Suite 300
Campbell, California 95008
Phone: (408) 369-8170
Fax: (408) 369-8174
Kathleen enjoyed a long visit from her daughters in
the morning (and they also enjoyed the visit -
especially the donuts).
One of Kathleen's favorite CNA's had surgery today.
Please send her warm thoughts.
Kathleen was sleepy but comfortable today. She did
not seem very alert
Kathleen was a little under the weather today.
She vomited so the later feedings came a bit later.
Kathleen seemed very loose today. Again, she
frequently made the noises she makes when she
was uncomfortable in the evening.
Kathleen was again sleepier today and got up just once
in the standing frame and wheelchair (3 hours total).
Kathleen's phlegm caused her oxygen to desat a couple
times when she had difficulty coughing it up and was
put on oxygen for a short time in the early morning
Kathleen seemed refreshed today and was awake and
alert most of the day. In the evening, however, she
frequently made the noises she makes when she
uncomfortable and also labored a bit with her breathing.
Here is another article on advancing bio-technology advances.
Kathleen was very sleepy today and was trying to
regain her strength after throwing up twice on
Here is a poem Mike read to Bean.
Here is an article regarding cell transplants.
Plans to bring Kathleen home for dinner this evening
were cancelled due to colds in the family.
Kathleen's van arrived and the house remodel is
progressing ahead of scheduled pace. Thanks to
Bill and Ray among many others at Devcon. Rachel
is excitedly telling everyone her "Mommy is coming
home" and plans to snuggle with her and "watch movies
while its raining outside."
Kathleen was sleepy in her wheelchair today but was
easily arousable when she started her therapy. She had an
incredible couple of days. Here is what she
- vocalized repeatedly on command
- opened her mouth 75% of the time when asked and
moved her tongue when asked as well...again, not in
the direction she was asked to, but she did mobilize
when asked to.
- She moved 3 fingers on her left hand back and forth
90% of the time when asked her to ( VERY consistently)
- She blinked twice (X1 ) when asked (reliability)
- She is extremely excitable to touch (good or bad?)
Kathleen exhibited very good "feedback" early today
especially when her hand and fingers were worked on.
As she was given ice, she came out with the
"eh" sounds on the exhale - at least twenty times.
Later, Kathleen was surrounded by activity today with an
election precinct at Almaden Care and Rehab Center.
Today olive oil was added to Kathleen's diet for two
reasons. #1 It is heart protective. #2 The fat can
help damaged brain cells in which the neurons are
still alive but the protective outer coating is
damaged (causing misfiring of the electrical
signals..resulting in jerks and seizures). This may
allow the gradual reduction of her anti-seizure
medicine which is also sedating.
Rachel sat down in the kitchen for about an hour today
and drew a "book" for Mommy. Here is one page (warning-
large file!) where Mommy's hair is standing up because she is
scared of the Halloween creatures. The rest of the book was a
series of pages about how Kathleen is the "best Mommy
in the world" and how much Rachie lovers her.
Kathleen slept very little and was awake well into the
evening, but was alert for portions of the day.
Here is letter from Mike to SJMN’s Editor.